Neurodisability in Adults - Challenges and Care Beyond Childhood

Neurodisability in Adults: Challenges Beyond Childhood

Introduction For many years, neurodisability has been largely associated with children. Most conversations revolve around early diagnosis, developmental support, and childhood interventions. However, as individuals grow older, the challenges do not simply disappear. Instead, Neurodisability in Adults comes with its own unique set of difficulties that affect quality of life, independence, and long-term health. This […]

Pediatric neurologist consulting with a child on congenital neurological disorders, genetics, and brain health

How Genetics Plays a Role in Congenital Neurological Disorders

Introduction Genes influence almost every aspect of human development—especially how our brains and nervous systems form. Over the past few years, researchers have uncovered how genetics deeply affects Congenital Neurological Disorders, which appear at or shortly after birth. Although these disorders vary in severity, many share a genetic origin. Fortunately, with increased knowledge, families can […]

Global Collaboration

Global Collaboration Among SMA Experts: Why It Matters for Patients

Introduction: Why Spinal Muscular Atrophy Needs a Unified Approach Spinal Muscular Atrophy (SMA) is a rare yet life-altering genetic disorder that affects the motor neurons, leading to progressive muscle weakness and atrophy. Despite being uncommon, SMA poses complex challenges in diagnosis, treatment, and long-term management. However, as treatment options and gene therapies rapidly evolve, one […]